Wednesday, August 18, 2010

Switch to Generic?

Janet writes: Our health insurance company insists on generic medications when they are available. We can get brand name, but our doctors must specifically prescribe and pre-authorize these and we have to pay a higher co-pay. Most of the time it’s not an issue.


This past week, however, it was a pretty big issue. Most people with MS are on some type of anti-depressant, and Tim uses Effexor. Well, the generic form of Effexor was recently approved and, of course, our insurance company automatically switched his prescription. We didn’t think anything of it, but after a day or two taking these capsules Tim started complaining of dizzy spells, more anxiety, more difficulty focusing, and more word finding problems. He also started his “wobbly walk” thing again.

We called the doctor, explained the drug switch, and the doctor put him back on brand name Effexor. This required a couple of days to allow the prior authorization to go through. By yesterday, after not having had his drug for almost a week, Tim had a fairly major “meltdown” that was so bad he couldn’t even describe it to me. (Other than the tremors which I could see.) Let’s just say I was ready to haul him into the emergency room. I called the drugstore, however, and the prescription was ready, so I picked it up and he took one right away. After a day and another pill, he is fine and out on the lake fishing.

So the moral of this story is, don’t let your insurance company switch your medications without approval from your doctor. Even if the active ingredient is the same, the inactive ingredients may not be, and you may not react to these medications the same way that you react to the brand name drugs. This doesn’t mean that generic medications are bad, and they do save you money, but please make sure they are the right medications for your condition before making the switch.

Here’s a short, easy to understand article on the differences between brand name and generic medications:


Wednesday, August 4, 2010

CCSVI and the Emotional Journey by Angela

This YouTube video, CCSVI and the Emotional Journey, was produced by Angela, who crusades for CCSVI treatment through her website, http://www.flowers4ms.com/. While Angela's primary topic in this video is CCSVI, she also speaks about cognitive decline, Tysabri treatments, PML, and frustration with the medical establishment - all topics that those of us dealing with the "cognitive meltdown" can relate to. You might find yourself nodding in agreement with some of her statements.


Saturday, July 31, 2010

Cognitive Meltdown Workshop

When we started this blog, we were working with some members from our local support group on an idea for a workshop to address the topic of cognitive symptoms in MS and how these symptoms affect relationships with support partners. After a lot of time and work, the workshop is put together and scheduled! We really hope that we can help some people address the cognitive issues they are experiencing and how to handle those issues with their families. Here's the link for more information:

Thursday, July 8, 2010

Cognitive "Melt"Down

Hot, hot, hot. Hot and steamy. When did we move to the Amazon? Tim is wearing his cooling vests so much, I’m not sure they will last through the summer!


The hot weather causes fatigue, of course, and that causes the cognitive symptoms to kick up. Tim spent yesterday morning fishing and yesterday afternoon taking a nap because he really couldn’t do anything else. He was better by evening and admitted that the heat had wiped him out. Sleep and cool indoor air fixed the problem. I feel bad for anyone who does not have access to air conditioning in this weather.

If you don’t have a cooling vest and want to get one free, you can apply for one through the Multiple Sclerosis Association of America. Their program allows you one free cooling vest, plus wrist cuffs and a neck wrap. Here’s the link: